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The THAOS Registry is a global, observational survey of patients with transthyretin amyloidosis (ATTR), including both inherited and wild-type disease. Learn more about ATTR, the THAOS Registry and how to become a clinical site.

Patient and Caregivers

The THAOS Registry contains medical information on patients with transthyretin amyloidosis (ATTR). The goal is to increase the understanding of the disease and improve outcomes. Learn the facts about Transthyretin Amyloidosis and about the THAOS Registry

THAOS Investigator

For participating THAOS investigators and their staff.

WELCOME TO THAOS

The Transthyretin Amyloidosis Outcomes Survey (THAOS)

The Transthyretin Amyloidosis Outcomes Survey (THAOS) is a global, observational database of clinical information on patients with TTR amyloidosis (ATTR). The principal aims of THAOS are to enhance the understanding of the variability, progression, and natural history of TTR amyloidosis by studying a large and heterogeneous patient population. Survey data may be used to develop new treatment guidelines and recommendations and to inform and educate clinicians about the management of this disease. The ultimate goal is to better manage and treat patients with TTR amyloidosis. The Survey will be open for a minimum of 10 years.


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