Support

Living with, or finding out a family member has, or is at risk of, a rare genetic disease such as TTR amyloidosis can be worrying and challenging, both physically and emotionally. A list of support groups for your patients and individuals at risk of developing TTR amyloidosis can be found here.

Factsheets

The following downloadable factsheets summarize the information on this website:


For any questions regarding the THAOS registry or other health-related information, please contact:


If you are interested in becoming a THAOS Investigator, please contact:


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Additional Resources:

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