Living with, or finding out a family member has, or is at risk of, a rare genetic disease such as TTR amyloidosis can be worrying and challenging, both physically and emotionally. A list of support groups for your patients and individuals at risk of developing TTR amyloidosis can be found here.


The following downloadable factsheets summarize the information on this website:

For any questions regarding the THAOS registry or other health-related information, please contact:

If you are interested in becoming a THAOS Investigator, please contact:


Additional Resources: